How to protect people living with a rare disease as lockdown measures are being lifted: The Covid-19 pandemic has had[…]
Read moreMonth: August 2020
Sickle Cell Disease
What is Sickle Cell Disease? Sickle cell disease (SCD) is a rare blood disorder that is inherited in an autosomal[…]
Read moreGray Platelet Syndrome (GPS)
What is GPS? It is an inherited bleeding disorder associated by abnormal platelets which are small blood cells involved in[…]
Read moreFemale hemophilia
Female hemophilia is rare. Women with hemophilia are called “symptomatic carriers” meaning that in addition to carrying the gene, they[…]
Read moreBleeding Disorder
Recognizing Women Carriers Of Hemophilia
Child and Youth Care (CYC) Response to Covid-19
As CYC we stand in solidarity with other organizations as we express our heartfelt support to the individuals and families[…]
Read more