September Edition Week 1: CASE MANAGEMENT in an NGO This week, our organization got busy organizing our various patient files.[…]
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Child And Youth Care Zimbabwe Virtual Run!
Introducing our very first Child And Youth Care Zimbabwe Run for children living with rare diseases. To be held from[…]
Read moreRare Diseases: How to cope during Lockdown
How to protect people living with a rare disease as lockdown measures are being lifted: The Covid-19 pandemic has had[…]
Read moreSickle Cell Disease
What is Sickle Cell Disease? Sickle cell disease (SCD) is a rare blood disorder that is inherited in an autosomal[…]
Read moreGray Platelet Syndrome (GPS)
What is GPS? It is an inherited bleeding disorder associated by abnormal platelets which are small blood cells involved in[…]
Read moreFemale hemophilia
Female hemophilia is rare. Women with hemophilia are called “symptomatic carriers” meaning that in addition to carrying the gene, they[…]
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Recognizing Women Carriers Of Hemophilia
Child and Youth Care (CYC) Response to Covid-19
As CYC we stand in solidarity with other organizations as we express our heartfelt support to the individuals and families[…]
Read moreWorld Blood Donor Day
On 14 June 2020 WHO and all countries will celebrate World Blood Donor Day The need for safe blood is[…]
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