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Category: Rare Diseases

Rare diseases

Institutional Strengthening

September 30, 2021 Roshni Rare Diseases

September Edition Week 1: CASE MANAGEMENT in an NGO This week, our organization got busy organizing our various patient files.[…]

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Child And Youth Care Zimbabwe Virtual Run!

November 10, 2020 Trudy Nyakambangwe Donations, Rare Diseases

Introducing our very first Child And Youth Care Zimbabwe Run for children living with rare diseases. To be held from[…]

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Rare Diseases: How to cope during Lockdown

August 10, 2020 Trudy Nyakambangwe Covid-19, Rare Diseases

How to protect people living with a rare disease as lockdown measures are being lifted: The Covid-19 pandemic has had[…]

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Gray Platelet Syndrome (GPS)

August 10, 2020 Trudy Nyakambangwe Rare Diseases

What is GPS? It is an inherited bleeding disorder associated by abnormal platelets which are small blood cells involved in[…]

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Female hemophilia

August 10, 2020 Trudy Nyakambangwe Rare Diseases

Female hemophilia is rare. Women with hemophilia are called “symptomatic carriers” meaning that in addition to carrying the gene, they[…]

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Bleeding Disorder

August 9, 2020 Trudy Nyakambangwe Rare Diseases, Women's Month
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Recognizing Women Carriers Of Hemophilia

August 9, 2020 Trudy Nyakambangwe Rare Diseases, Women's Month
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Child and Youth Care (CYC) Response to Covid-19

August 9, 2020 Trudy Nyakambangwe Covid-19, Rare Diseases

As CYC we stand in solidarity with other organizations as we express our heartfelt support to the individuals and families[…]

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