As an organization we believe that every child deserves an opportunity to attend school and be educated to create the future they envision for themselves.
The Educare Project is a movement facilitated by CYC as a way of assisting vulnerable and neglected children with rare diseases who are unable to go to school. Due to problems pertaining to rare diseases most of families and children are faced with several challenges which include socio-economic problems, unemployment of parents/ caregivers, special education problems, and parents who are in correctional services. Poverty is a great barrier to accessing education, some of these children also come from high-risk populations such as those who are also dropouts, pregnant teens, early marriage, and abuse victims.
As part of the project both boys and girls from primary and secondary government schools will be offered financial support through payment of tuition fees for a period of one year. These funds also include stationery and school uniforms.
To kick start off the Educare Project, we organized a stationery drive to raise learning materials for vulnerable and neglected children including those with rare diseases.
Our stationery Drive was a huge success. We received over 1200 exercise books covering Grades 1 to Upper Six level, for all relevant subject areas. Along with a wide range of stationery such as pencils, glue sticks, sharpeners, pens, chalk, folders, examination pads, book covers, khaki covers, diaries, attendance registration books, school bells, etc, the list goes on.
We are over the moon and extremely grateful and appreciative for all the donations received! And a warm special thank you to: @rankzimbaweofficial @101stationers @bammstat and @gainsboroughstationers for their generous donations towards our project.
To distribute our stationery we organized 50 Hampers, in honor of the #DayoftheAfricanChild. We celebrate this momentous day by advocating for the African child who has a rare disease in collaboration with Prisons Outreach Support.
For African children with a rare disease, the lack of awareness and recognition leads to discrimination and challenges in healthcare and education. Thank you to everyone who helped us make a difference in their lives.
RARE DISEASE AWARENESS CAMPAIGN-DOMBOSHAVA in collaboration with Zimbabwe Women Doctors Association
On the 25th of May 2022, to commemorate Africa Day and our rare disease day we got together with Zimbabwe Women Doctors Association ( ZWDA) to capacitate families and communities for early diagnosis care and social inclusion.
The fundraiser took place at Domboshava and was hosted by ZWDA as a Health Wellness day. We collaborated to raise awareness about rare diseases, create a platform for patients with rare diseases to come forward, educate the community on the existence of rare diseases, and advocate for early diagnosis and healthy living.
How did the fundraiser go?
The day began with presentations on rare disease definition, prevalence, and the different challenges that the families face right from the identification, diagnosis, and treatment options available.
Trudy presented to school children from Heritage School to make them aware of rare diseases.
Patients shared with the participants their journey including the challenges that they face as they live with a lifelong condition and how their families have supported them and the stigma and discrimination that they face in their day-to-day lives.
Speaking here is our new patient’s mother, Amai Takunda ( who lives with a rare disease called anorectal malformation of bladder exstrophy)
We did interviews with a local media company that runs a media house and have a television channel. The interviews were run on their television channel and an article was published in their newspaper which has a wide coverage, and they are also well established. They distribute their newspapers nationwide and their television is available free to air.
Distribution of IEC material, books, t-shirts, and brochures.
The distribution of IEC materials on rare diseases helped to educate the community about the existence of rare diseases as it had information on rare diseases. We distributed the friendship story on rare diseases and brochures with information on rare diseases and our organization.
Different health care providers exhibited and provided information and the services that they offered to the participants and thereby increasing their knowledge on steps to take and avenues to follow. Booklets, pamphlets, and business cards were exchanged, and this provided a good opportunity to network with other stakeholders and move the rare disease awareness agenda
There were free medical health check-ups which included BP checks, BMI, and also sugar levels. A Zumba fitness coach also did a session as people had the chance to have some exercise through dancing. People also participated in mountain climbing and had a tour of the caves. There was also a health talk presentation from the doctors to encourage people to choose a healthy path through improving their diet.
They were cyclists who did a 35km stretch from Chisipite to Domboshava in support of rare disease patients. A raffle ticket sale was also organized to help raise funds for the patients. An auction was also done on cakes and fish and it was very successful.
Overall it was a fantastic day with lots of fun. Our goal was to mobilize and create awareness about rare diseases and we succeeded in doing so. All proceeds raised at the fundraiser were donated to our organization.